By Ashley Hattle When research views individuals with pain as data points on a graph or medical curiosities, clinical...
Blog Articles
Patient Registries: Communities Steering Modern Research
By Julia Daye The last decade has seen a boom in patient registries—databases that collect voluntary information from...
Measuring an Invisible Experience: Understanding Pain Scales—And Their Limitations
By Samantha Kahn Providers and researchers routinely ask patients: “On a scale from 0 to 10, how would you rate your...
Nicole Watson
Learning to Be More Than Her Crohn’s By Jill Waldbieser Nicole Watson was diagnosed with a lifelong, life-changing...
The Dieng Family
‘We’re the Migraine Family’ By Ashley Hattle At 13, Jibreel Dieng has known the pain of migraine attacks for almost...
Devin Goldstein
Healing from Pain and Doubt: The Power of Putting Health First By Sara Walsh He hadn’t fallen or even landed...
Dawn Gibson
Using Butterflies and Community Support to Navigate Challenging Pain By Grayson Schultz Thousands of people who follow...
Amy Liles
Finding Blessings in the Midst of Oppressive Pain, Delayed Diagnosis By Pressley Frevert Amy Liles is relentlessly...
Gayle Bell
A Lifetime of Not Being Taken Seriously By Calli Barker Schmidt Pain has been a constant in Gayle Bell’s life since...
Preksha Gupta
Engineering a Better Life Despite Pain By Audrey Ingram Preksha Gupta is a bright, bubbly, 23-year-old mechanical...
Nisha Ray
With Multiple Diagnoses, Self-Advocacy is a Vital Tool By Kirsten Ballard When her pain was at its worst, Nisha Ray...
Cory Lewis
Surviving and Advocating for a Better Future for Those with Sickle Cell By Emil DeAndreis One night, seven-year-old...